Baby Emma has made it through the night. I just talked to Mickayla and I am on my way back up. Came home to rest last night but no luck there so I'll be getting the kids some clothes and going back up. Her calcium is still
not up to where it needs to be but my little girl is resting now and no
seizures last night so hopefully we will find something out today. For 6lbs she
is a hell of a fighter and not giving up so we aren't either. Please
pray for Emma she has been fighting for her life since she was in the womb and
she is not giving up we need all the prayers we can get right now and hope she
pulls through this. Thank you for all the calls and concerns it means a lot.
Things are looking up but unfortunately she didn't do well when they weened her
oxygen down so she is going to be on that for awhile. She is very congested this
morning and we are waiting on test results hoping she isn't going to have
to fight viral infection now on top of this all. Still not sure why or what
caused her calcium to get so low. But now that she is stable they can take the
time to figure that part out. We are also waiting on genetics testing results
which could answer this all. KEEP PRAYING FOR EMMA!
Mickayla Fewkes McGovern
Opening them eyes and making her "uh uh" noises. Thank u for the prayers!
Kayla called and said she just poopied a lot! So we know that part is working ok. She has a calcium deposit on her brain and kidney from not having any and the body trying to store it in "safe" places but they did say she was in no danger now and will just be keeping an eye on it and treated if need be.
Mickayla Fewkes McGovern
Opening them eyes and making her "uh uh" noises. Thank u for the prayers!
Kayla called and said she just poopied a lot! So we know that part is working ok. She has a calcium deposit on her brain and kidney from not having any and the body trying to store it in "safe" places but they did say she was in no danger now and will just be keeping an eye on it and treated if need be.
Emma is back on oxygen
today, just had EKG done waiting on results. Calling in kidney specialists
because she has calcium deposits on kidney. Might need blood transfusion tonight, we are just waiting hopefully she will not but they have assured us it will match
her exactly cells and everything so it wont be to hard on her body. Just wanted
to give an update please keep prayers coming she is needing them. Thanks will
try to keep updates but our phones are off while we are on the floor with her.
Baby Emma had the blood transfusion and no difficulties, she is a fighter. She is almost 7lbs now, they weighed
her tonight before I left. She is feeling better I think she looks very good and
is content. Right now she is giving her Aunt Sami a rough time cause she is
trying to take pictures of Emma and Emma must not have same idea so she is
making her work for them. Kayla posted pic of Sami in chair at the end of Emma's bed so things must be getting pretty serious between them too tonight. We will see
who gives up first! Keep prayers coming she needs them we have a long rough
road ahead but she is a warrior I know she can handle it she has proved to us
she can handle just about anything, she's Dubba Ds girl and she can handle
anything that gets in her way.
Just talked to
Mickayla and Emma is doing good she was crying very loudly which is great cause
I could hear her over the phone that's awesome she has a real cry now and it's
LOUD. Getting clothes dried cause Grandma screwed up n slept in so my day is
starting out later than wanted. Speech Therapist is coming in again today to
check her and see if she can have a bottle today again, giving small amounts
15ml yesterday by bottle slowly but surely she is getting better. Still waiting
on Genetics Test. You would think that all the new technology that is out
there we would not have to wait forever for test as important as these to take
so long.This test will answer a lot for Miss Emma. She is a fighter, she has the
heart and soul to live she has proved that. Mickayla and Kory are holding up
pretty good the nurses and staff and doctors are so good up there to all of us
and take very good care of my kids I am so thankful for this they are the best.
When something like this happens you don't realize or even think how it changes
your whole life and the way you look at things,and what we take for granted you
look at things in a totally different way than ever before my little Emma has
opened my eyes for sure at a lot of different things and seeing her laying there
in that bed and her smiles and many faces and mad yells she does proves to me
she is going to be ok. I raised my girls to be strong and take no shit off of
anyone or anything that is thrown at them you come out the better person and be
stronger for it and I think my little Emma has caught on she is such a quick
learner. Miss Emma is a fighter and will overcome anything that is thrown at
her she has 2 of the best parents a child could ever want or have and family.
Please keep the prayers coming because they are doing miracles for her, God has
a plan for Miss Emma we will have to wait and see what it is. Thank you for the
calls and Prayers it means more than you know.
April 6
Today is a big blessing Miss Emma is now eating from a bottle and may get her feeding tube out tonight. YEAH!!!!! She is totally different from yesterday and last night. Emma and I and nurse Pam had a VERY ROUGH night last night I held her for a few hours to calm her down she had a belly ache out of this world. She is calmer today put her in swing, dressed her and hopefully she will be okay for a few days or forever. Miss Emma and I are spending another nite together hopefully better than last nite. Grandma is still worn out from last nite.Kidney report came back fine.
So here is the update
on my Little Miss Emma. Grandma went home last nite to get stuff done and come
back up today ,and I said "be a good girl" NOT. Kayla told me she
ripped her feeding tube out this morning . So she now has a new one in the
other side of her nose, but at least she was polite and handed it to the nurse.
SHE IS SO ORNERY!!! I made it back this morning and we had a Easter egg hunt for Maddie
in the play area she loved it. Emma and Maddie both got Easter baskets from the
hospital, so cool. Emma has alot of gas tonite and a belly ache she is not a
happy camper but grandma bought her a real soft blanket and she loves it, so we
are chilling in the recliner tonite to keep her calm with her comfy blanket and
she is loving it. Doing pretty good today and nite try to keep everyone updated
as much as I can. Thank you for the prayers, keep her in your thoughts and
prayers please, she is still fighting and has a long road ahead.
Well it's Tuesday... In
another hour it will be the 3 week mark of the Olive Garden episode. 1 week
since the MRI code. But on a positive note: Emma is 8 weeks old!!!! And finally
sleeping from being up all night again. She has the same nurse as last
Tuesday she keeps telling Emma its Wednesday and don't try anything funny!
As you can see there have been many ups and downs, smiles and frowns. There are still many details to be had, unfortunately mostly sad. But our time with Emma is definitely not coming to a close, so we lift ourselves up taking the good with the bad, she will overcome each hurdle thrown at her as she has thus far. Keep praying for Emma, just when we start to figure things out, she changes the game -and this is why we love her even more!
:Sami
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