After an extremely loooonnnnggg day.. we are settled into the Holiday Inn in St Louis, MO.
Emma is swinging in her swing. She cant have any formula after 1:30 a.m. and cant have any water after 5:30 a.m. So we are probably in for a long night.
The ABR (Auditory Brainstem Response) went as good as can be expected.
*SEE "Can you hear me now?!" on Blog Posts
The trip down went well. She had to stay awake so she would sleep during her ABR. Boy! That was a treat!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! NOT! ...... Who makes these rules?! Seriously! Well, any who.. it worked.. She went in for ABR we snuggled up in their so called "comfortable recliner" ... o_o Not so much "comfort" there.
The test was scheduled for 2:45pm and we left Children's at exactly 6pm. Kory was starting to think we left him.
We are all extremely exhausted but I wanted to let you all know things are going smoothly.. we are just tired. (This will probably last for a few weeks.)
Kory was extremely thrilled with the reading material in the waiting room... Ha ha Not so much .. He said he was afraid to leave the waiting room because he thought he would get lost.
We are all very anxious for tomorrow to be here and our prayers to be answered and Miss Emma will come out of surgery and have a speedy recovery. (Can you tell I'm a little nervous.. AND..AND...AND..)
As you lay your head down tonight I ask that you say a prayer for our entire family. Those that cant be here, PaPa Billy who is left at home to fend for himself because we stole Gramma Jan away, Kory & myself, Maddie who is on her first trip with Emma (call it "our first family vacation" if you will..by no means is it a vacation for us but it is a blessing to have Maddie here with us this time.) Pray for Gramma Jan since she has to be strong for all four of us. Most of all pray for Emma and her medical team this week. Remember God is good! Praise him for his work through our family!
Here you will get to know Kory, Mickayla, Maddie and Emma McGovern, it is here we will tell you our story. Emma was born February 14, 2012 and on March 27, 2012 our world turned upside down with her first episode of ceasing to breathe was upon us. We have since found out that Emma has a genetic disorder of 10p13, a deletion of the 10th chromosome. There is a long road ahead, but we have the strongest little fighter around!
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